Local Fundraisers Raise Awareness of Rhett Syndrome
by J. Werner Nov 03, 2009
“Spending Time Ending Rett II” featured a flurry of fundraising efforts and celebrities.
THE WOODLANDS, Texas -- “Rett” Syndrome may not be a household word, but after a flurry of fundraising efforts this past weekend, it’s definitely been added to the community’s vocabulary. In addition to the 1st Greater Houston ‘Strollathon’ on Halloween, complete with a costume contest, a concert was hosted by country music sensation, Clint Black, and the fundraising was capped off with a charity golf tournament.
The inaugural Strollathon was held on Oct. 31, at Rob Fleming Park in The Woodlands, and coordinated by Kenna Seiler, whose 5-year old daughter is a victim of Rett Syndrome. Mrs. Texas International, Bonnie Hubert, was on hand to lend support and judge the costume contest. The event was deemed a huge success in large part to the multi-stage fundraising approach. The “Spending Time Ending Rett II” event-filled weekend included a concert following the fundraising stroll, performed by Kevin Black, Clint’s brother. Clint Black’s concert on Sunday, was held at Dosey Doe in memory of his niece, Cortney, who lost her battle with Rett syndrome in 2003, at age 16. The beautiful weather prevailed and on Monday the 6th Annual ‘Tee It Up For Rett Syndrome’ golf tournament was held at Bentwater Golf Course on Lake Conroe.
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